What is porphyria? Diagnosis and treatment of this genetic disease
What is porphyria? Diagnosis and treatment of this genetic disease
Jun 13, 2022
emergency-live.com
It took months to hear the words: Acute Intermittent Porphyria.
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United Porphyrias Association on Instagram: "If we had a dollar for every time a doctor said this...🥴 Porphyria is a group of rare, serious diseases that many healthcare professionals still don’t recognize. That’s why awareness matters. 💜 The more we share, the faster we get diagnosed, treated, and understood. 📚 Learn more and help us spread the word at porphyria.org #UnitedPorphyrias #PorphyriaTogether #porphyria #chronicillness #raredisease"
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