A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations ...
Despite its prevalence and impact, there is no CF-specific guidance for the assessment and management of pain. The Cystic Fibrosis Foundation assembled an expert panel of clinicians, researchers, ...
The U.S. Food and Drug Administration (FDA) today approved the expansion of Trikafta (elexacaftor/tezacaftor/ivacaftor) to ...
I felt emotionally and physically unprepared to navigate my daughter’s cystic fibrosis diagnosis while managing my mental health. However, connecting with other families in the CF community, along ...
Caring for a child with CF is challenging in more than one way. My daughter’s struggles often bring up my own mental health obstacles, making it difficult to be fully present for her when she needs me ...
I was diagnosed with cystic fibrosis-related liver cirrhosis in 2004 at the age of 9. Growing up, my disease wasn’t something to be pitied or seen as a weakness. It was a strength. I had the mentality ...
This blog discusses suicide and suicidal ideation. If you or someone you know is suicidal, please contact your physician, go to your local ER, or call/text the National Suicide Prevention Lifeline at ...
Living with cystic fibrosis demands a complex regimen of care and treatment. Across the U.S., managing this care involves navigating a maze of health insurance coverage and significant out-of-pocket ...
Your legacy of adding tomorrows for everyone with CF. Thank you for your incredible support. By including a gift to the Cystic Fibrosis Foundation in your will, you are making your mark on the future ...