Family caregivers express immense devotion to others, but they should also remember self-care, writes columnist.

Spinraza (nusinersen) may help stabilize lung function in people with SMA types 2 and 3, delaying the need for breathing ...

Zolgensma outperformed Spinraza in achieving a more sustained clinical response for children with SMA type 1, a comparative ...

For columnist Alyssa Silva, control has always been her safety net. But in reality, it doesn't protect her; it exhausts her.

Most children SMA type 1 can survive an episode of pARDS, a life-threatening respiratory failure, under standard protocols, ...

When columnist Connie Chandler tackles an art project, it becomes a creative collaboration thanks to her supportive team of ...

A study found mutations that cause SMA may trigger problems with bone cell communication, suggesting a potential new way to treat weak bones.

Columnist Sherry Toh can't fathom generative AI replacing human empathy when it comes to caregiving for people with rare diseases.

Home healthcare requires adaptability, writes columnist Ari Anderson, who has relied on home health nurses for decades.

Columnist Halsey Blocher has a weird experience reminiscent of an Edgar Allan Poe tale involving things that go beep in the night.

For columnist Alyssa Silva, slowing down during the winter months isn't always easy, but it's necessary to protect her health.