Pain is a constant when you live with SMA, writes columnist Connie Chandler, who is trying to become more constructive about ...

Higher levels of the GFAP protein in the cerebrospinal fluid are associated with better clinical response to Spinraza in SMA, ...

A Google spreadsheet helps columnist Connie Chandler set the schedule for her caregiving team, who provide her with ...

Guest writer Joanna Buoniconti wore a mask long before COVID-19, just one of the things she did to not get sick during cold ...

The European Commission has given approval to a high-dose regimen of Spinraza (nusinersen) for people with 5q spinal muscular ...

A small molecule known as 10H-phenothiazine reduced the loss of motor neurons, the nerve cells that are lost in SMA, in ...

Finding medical providers who will work with her public health insurance has proven to be a challenge, says columnist.

Columnist Helen Baldwin pays tribute to a late member of the SMA community whose positive impact on the world is immeasurable ...

Alice Wong, a disability rights activist with spinal muscular atrophy who died in November, left behind a legacy of advocacy ...

A study tested 38 children with SMA who took part in an eight-week breathing exercise program, with some also engaging their ...

Changes in motor units closely reflect disease severity in people with spinal muscular atrophy (SMA), suggesting potential ...